• Tue. Feb 27th, 2024

North East Connected

Hopping Across The North East From Hub To Hub

North East families help scientists show for the first time how early invention can help autistic children for years to come


Oct 6, 2016

A North East mum has praised new research showing how early intervention to help parents and their autistic children communicate better can help reduce autistic symptoms in the long-term.

Tracey Sawyer-Copus, of Philadelphia, Houghton-le-Spring, is mum to Aaron, now 13, and Alex, 18. Both boys have autism, and Alex also has ADHD.

Experts from Northumberland, Tyne and Wear NHS Foundation Trust and Newcastle University, along with colleagues from across the UK, are behind the first study to show early intervention helping parents communicate with their child can have a long-term effect on reducing the severity of autism symptoms.

For Tracey, who took part in the study with Aaron, the results of this research could really help parents of autistic children.

The 44-year-old said: “If they know that this form of intervention works then they can use it – get it in schools and in the home. They can show parents how to do this.

“I always knew this study won’t be for my boys, but will be for somebody else’s. Why wouldn’t you get involved if it’s for somebody else’s children, for the next generation?”

The Preschool Autism Communication Trial (PACT) saw the pair attend play therapy sessions after Aaron was first diagnosed, aged four. Mum and son would be videoed, so Tracey could watch the session back. With feedback from therapists, Tracey could enhance her awareness and response to Aaron’s unusual patterns of communication.

The Sawyer-Copus family were one of 48 families in the North East to take part in the study, which found that children who did get this intervention had less severe overall symptoms six years later than those who did not receive it.

Tracey, who works as a practice nurse, said: “Aaron was non-verbal and had very limited speech. He wasn’t interested in people or toys or playing. He was in his own little world.

“When we were asked to take part in the study, we said ‘definitely’. After the diagnosis we hadn’t really known what we were going to do, so any help we were going to take.

“The play therapy was really good. It taught him to play – that was the biggest thing. He didn’t play with toys, but by the end he was playing by himself. It was just wonderful.

“We noticed a big difference. In that year he went from being non-verbal to being able to talk. He doesn’t always, but at least now he has the choice.

“It’s just the best thing in the world. As a parent you just want your child to be happy and safe and have friends. Now, if he does want to be sociable, he can be.”

Ann Le Couteur, Professor of Child and Adolescent Psychiatry at Newcastle University and Northumberland, Tyne and Wear NHS Foundation Trust, said: “This is a landmark study as it is one of the first studies to identify a relatively long-term benefit  – the follow-up period is just under six years – of an early intervention for autism.

“Our findings suggests that helping parents to focus on early social communication skills with their child through play can lead to improvements in autism symptoms.

“It is important to note that this is not a ‘cure’. These children will continue to show symptoms, but the improvements are evident over this time period.

“However, we still need to support children with autism and their families as they deal with a range of challenges over time, including additional behavioural and mental health problems.”

This study is an example of the importance of Newcastle Academic Health Partners, a collaboration involving Newcastle Upon Tyne Hospitals NHS Foundation Trust, Northumberland, Tyne and Wear NHS Foundation Trust and Newcastle University. This partnership harnesses world-class expertise to ensure patients benefit sooner from new treatments, diagnostics and prevention strategies.

By Emily